January

        Millie's Journey

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        teeethMillie had her last swim class today. She really loves the water. I asked for and received copies of the reports that Millie's cardiologist sends over to her pediatrician. One of the reports mentioned that Millie has a patent foramen ovale. That was news to me! The report was from when Millie was 1.5 months old, maybe her foramen ovale has closed by now. I will ask about this the next time we visit Millie's Cardiologist.

        August 14th 1997
        We got wonderful news from Millie's echo today! Both of Millie's VSD's are closing. Her largest one was 7mm and is now only 1.5mm! Her smallest VSD is "tiny" now. This means the surgeon will not have to repair them!!!! The whole family is so excited for Millie. She will still9 months old need to have her PA band removed but our PC is hopeful the she will not need a mid line incision. Her blood pressure is also down and she has no re-coarc- tation of the aorta. She has been taken off all her diuretics and only needs to take .7 of digitalis twice a day. Her cardiologist will call us next week to give us Millie's surgery date. He is anxious to get her band removed before it does any more damage to her pulmonary artery.

        August 25th 1997

        Millie's Cardiologist called today. He told us that Millie's VSD's are not as small as they thought and they have put surgery off for another six months and they will have to split her sternum. We also found out that Millie's Bicuspid Aortic Valve is stenotic. She may need the Ross surgery someday. I don't like this roller coaster ride we are on!

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